Hemophilia (also known as hemophilia) is a hereditary disorder in which the blood’s ability to clot is significantly reduced and even minor injuries cause excessive bleeding.
Typical image.Getty Images
World Hemophilia Day, held annually on April 17, is dedicated to raising awareness of hemophilia and other hereditary bleeding disorders. This day is very important as increasing awareness of hemophilia increases access to diagnosis and medical care for millions of people.
For the uninformed, hemophilia (also known as hemophilia) is a hereditary disorder in which the blood’s ability to clot is significantly reduced and even minor injuries cause excessive bleeding.
history
In 1937, hemophilia was divided into two categories, A and B. However, at that time, there was no effective cure for this disorder. The World Federation of Hemophilia (WFH) was established in 1963 to enhance the treatment and care of all hemophiliacs.
WFH began observing World Hemophilia Day in 1989. We chose April 17th as the day to bring the community together and celebrate the birthday of WFH founder Frank Schnabel.
significance
World Hemophilia Day is important because it focuses on some hereditary hemorrhagic diseases that afflict people. This day also makes it possible to bring together people suffering from illnesses such as hemophilia and share their story of how they live with the illness.
On this day, several institutions and individuals will host awareness campaigns, conferences, workshops and other events. In addition, landmarks and monuments in Australia and around the world glow red at night to support World Hemophilia Day.
World Hemophilia Day 2022 Theme
The theme of this year’s World Hemophilia Day is “Access to Everyone: Partnerships”. policy. progress. Involve the government and integrate hereditary hemorrhagic disease into national policy. “
This theme was chosen to convince governments around the world to make bleeding disorders a priority in national health policy. According to the World Federation of Hemophilia, health issues can be brought to the attention of legislators to promote sustained and equitable access to the care and treatment of hemophilia and other hereditary hemorrhagic disorders. ..
